Preparing for Data harmonisation
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Interview with Elizabeth S. Draper, Prof., University of Leicester, Project Leader
1. Introduction and Core Minimum Dataset
Elizabeth S. Draper, Prof.
An introduction to the RECAP cohorts and the work carried out by WP3 documenting the cohorts and their data. Additionally, an overview of the rationale and methods for the ongoing development of a core minimum dataset for preterm birth research are presented.
- the approach taken to identify, collate and harmonise data for the RECAP preterm project;
- which birth cohorts are included in the RECAP preterm project in terms of their geographical location, the year the birth cohort was initiated AND the ages at which follow-up assessments and additional data collection was carried out
- the processes & principles used to develop a core minimum dataset for use in future preterm birth cohorts
2. Metadata catalogue
Helen Collins, Dr.
An introduction to study level metadata, how and why we developed the Metadata Catalogue and where to find it on the RECAP Preterm Data Platform.
- What is study level metadata?
- Why is a metadata catalogue important?
- How we developed the RECAP Preterm metadata catalogue
- Where is cohort metadata found on the RECAP Preterm platform?
3. Anatomy of a data dictionary
An introduction to the development and purpose of a data dictionary and data schema, and why these are key to facilitating harmonisation and analyses.
- Understand what the RECAP Preterm data dictionary is and why it was developed
- Understand why and how the RECAP Preterm data schema was developed
- Understand how data mapping is carried out
- Appreciate the complexities of curating data from multiple cohorts and variable mapping
- Be able to prepare your own data dictionary and know how to access a data dictionary template, the data schema, and variable mapping instructions.
4. Introduction to Harmonisation
Charlotte Powell, Dr.
An introduction to the process of harmonisation, considering the purpose of harmonisation and some key early stages in the harmonisation process.
- To understand why data harmonisation is important?
- To understand the RECAP Preterm approach to harmonisation
- Be able to find the RECAP Preterm harmonisation guidelines
- To understand the importance of your research question
- To identify some key steps in the harmonisation process