News

This section keeps you updated on the major developments throughout the RECAP preterm Project.

RECAP preterm honours World Prematurity Day – 17 November 2020

Yet, World Prematurity Day is not only about problems, it is also a chance to talk about solutions! The multitude of events organised around the globe on World Prematurity Day remains the heart of the effort. Each year, an increasing number of countries join World Prematurity Day by raising awareness on social media (#WorldPrematurityDay2020) and organising national and local events, including public art installations, parliamentary hearings, health professional meetings, and charity or awareness marches.

This year’s slogan World Prematurity Day 2020, Together for babies born too soon – Caring for the future sheds a light on the importance of working in partnership to support families and healthcare professionals and to strengthen healthcare systems and drive the necessary change:

  • We need to promote respectful, culturally appropriate and responsive family centred care and support, including the provision of necessary space and facilities. Parents who are actively involved in the care of their newborn and are in close physical and emotional contact with their baby as early after birth as possible and during hospitalisation can have great benefits on the short- and long-term outcome of their baby, including for example: less need for respiratory support, increased weight gain, improved breastfeeding, shortened hospital stay, less readmission to hospital, or better neurodevelopmental outcome. Active involvement reduces parental stress, equips parents in better taking care of their baby and has positive effects on the parent-child relationship and family life at home, after hospitalisation.
  • Ensuring optimal working conditions for healthcare professionals is a critical element for optimal care. This includes sufficient resources, adequate staff training and supervisory support, as well as support by hospital managers and health policy makers, as well as the promotion of respect for healthcare providers and their work. Evidence based, high-quality treatment and care provided in a timely, people centred manner, by a well-trained, specialised multidisciplinary team and safe staffing levels improve health outcomes and enhance staff satisfaction.
  • Universal access and focus on equitable, high-quality, affordable services during and after birth or the provision of follow-up and continuing care services are critical to ensure the survival, health and good development of newborns, and represent a smart investment into the future of our societies. Politicians can actively support these efforts by establishing/updating evidence-based laws, policies and regulations, as well as organisational structures around the time of birth and implementing effective follow-up services during the first years of for all newborns in need.

Prof. Wolke, from the Department of Psychology and Division of Mental Health & Wellbeing (WMS) at the University of Warwick, focuses on the study of developmental pathways leading to psychopathology, social and emotional development, biological at-risk children (very preterm children), school and sibling bullying, infant regulatory problems (crying, feeding, sleeping) and parenting. Congratulations!

HAPP-e is the acronym for “Health of Adult People born Preterm – an electronic cohort pilot study” We are inviting adults with a history of preterm birth to be part of an innovative way of doing research. Click on the image below to find out more about the study and to complete the HAPP-e questionnaire. Filling out the questionnaire requires only a little bit of your time and may provide enormous insight for future generations. Thank you!

The project aims at studying the health and quality of life of individuals born preterm around the world, using exclusively digital tools. In the era of internet and social media, HAPP-e takes advantage of e-epidemiology tools to recruit a large sample of individuals, whose participation will be crucial in achieving better health outcomes, health policies, and healthcare practices for adults born preterm.

By participating, you are shaping the future of 15 million preterm babies born worldwide each year, while helping science and medicine move forward!

If you are an adult (≥ 18 years old) who was born preterm (less than 37 weeks of gestation), visit the link below to complete their questionnaire:

https://happ-e.inesctec.pt/

 

Currently, we are working on the new digital format with interesting facts. Register for the event already now and stay tuned: more information will come soon!

Registration for the Winter School is still open.

 

We wholeheartedly congratulate her to these royal honours!

Read more (Article in Norwegian)

We were very pleased that Prof. Dr. Vincent Jaddoe, the scientific coordinator of the LifeCycle (also an EU-funded Horizon 2020 consortium project), participated in the meeting as a guest speaker!

Learn more about the LifeCycle project!

A big thank you to all partners for their cooperation and timely submission!

To get in the mood for this beautiful city: La Grande Bellezza

This meeting will involve several RECAP cohort representatives in order to agree on the final outline of the “Qualitative study of children, parents and health care professionals on the relevance of available information, gaps and expectations on cohorts follow up” (D6.2)

Currently all milestones and deliverables are on track. For instance, important exchanges on the harmonisation and classification of the later available cohort datasets and the functionality of the data platform took place. Additionally, the process to decide on research questions to be examined with the platform was introduced.

The following article published by “The Guardian” sheds light on the connection between preterm birth and the risk of mental health problems later in life:

https://www.theguardian.com/society/2017/feb/13/very-premature-babies-at-risk-of-mental-health-problems-research

The RECAP preterm project will be presented at the APIC annual meeting on the 5th of May 2017 in San Francisco. Several cohorts outside the EU have already provided support letters for the RECAP preterm project to collaborate. A recent publication initiaited by APIC includes several RECAP preterm cohorts indicating the power of combining cohorts to determine universal outcomes in adulthood after VP/VLBW birth: Pyhälä R, Wolford E, Kautiainen H, et al. Self-Reported Mental Health Problems Among Adults Born Preterm: A Meta-Analysis. Pediatrics. 2017.