Publications

2022

Doetsch J , Almendra R , Severo M , Leão T , Pilot E, Krafft T , Barros H. 2008 economic crisis impact on perinatal and infant mortality in Southern European countries. J Epidemiol Community Health, 2023 Feb 22:jech-2022-219639. doi: 10.1136/jech-2022-219639. Epub ahead of print. PMID: 36813545.
Julia Nadine Doetsch, Vasco Dias, Inês Lopes, Regina Redinha, Henrique Barros. Record linkage of routine and cohort data of children in Portugal: challenges and opportunities when using record linkage as a tool for scientific research. Medical Law Review, 2022, fwac040, https://doi.org/10.1093/medlaw/fwac040
Julia Nadine Doetsch, Teresa Leão, Thomas Krafft, Henrique Barros.
Strengthening resilience of healthcare systems by focusing on perinatal and maternal healthcare access and quality. The Lancet Regional Health – Europe, Volume 21, 2022. doi: 10.1016/j.lanepe.2022.100508
Deborah Bamber, Helen E. Collins, Charlotte Powell, Gonçalo Campos Gonçalves, Samantha Johnson, Bradley Manktelow, José Pedro Ornelas, João Correia Lopes, Artur Rocha & Elizabeth S. Draper. Development of a data classification system for preterm birth cohort studies: the RECAP Preterm project. BMC Medical Research Methodology volume 22, 2022 Jan 07. doi: 10.1186/s12874-021-01494-5
Rachel Robinson, Polina Girchenko, Anna Pulakka, Kati Heinonen, Anna Lähdepuro, Marius Lahti-Pulkkinen, Petteri Hovi, Marjaana Tikanmäki, Peter Bartmann, Aulikki Lano, Lex W. Doyle, Peter J. Anderson, Jeanie L. Y. Cheong, Brian A. Darlow, Lianne J. Woodward, L. John Horwood, Marit S. Indredavik, Kari Anne I. Evensen, Neil Marlow, Samantha Johnson, Marina Goulart de Mendonca, Eero Kajantie, Dieter Wolke & Katri Räikkönen. ADHD symptoms and diagnosis in adult preterms: systematic review, IPD meta-analysis, and register-linkage study. Pediatric Research, 2022 Jan 07.
doi: 10.1038/s41390-021-01929-1
Andrei S Morgan, Marina Mendonça, Nicole Thiele, Anna L David. Management and outcomes of extreme preterm birth. BMJ 2022 Jan 10. doi: 10.1136/bmj-2021-055924

2021

Marques SCS , Doetsch J , Teixeira R , Abate G, Brødsgaard A, Brubakk AM, Colombo G, Cuttini M, Evensen KAI, Hennissen V, Indredavik MS, Kajantie E, Lebeer J, van der Pal S, Pedersen P, Sarrechia I, Virtanen E , Barros H , RECAP Preterm-WP6 QS Work Group. Increased interaction and procedural flexibility favoured participation: Study across European cohorts of preterm born individuals. J Clin Epidemiol, 2021 Dec 26;S0895-4356(21)00432-7. doi: 10.1016/j.jclinepi.2021.12.027. Online ahead of print.
Teixeira R , Doetsch J , Freitas AI , Lorthe E , Santos AC , Barros H , RECAP-preterm consortium. Survey of data collection methods and retention strategies in European birth cohorts of children and adults born very preterm. Paediatr Perinat Epidemiol, 2021 Dec 27. doi: 10.1111/ppe.12845. Online ahead of print.
Anderson PJ, Marques de Miranda D, Rodrigues Albuquerque M, et al. (2021). Psychiatric disorders in individuals born very preterm / very low-birth weight: An individual participant data (IPD) meta-analysis. EClinicalMedicine. Volume 42, 101216.
Bilsteen JF, Ekstrøm CT, Børch K, Nybo Andersen A-M. (2021). The role of parental education on the relationship between gestational age and school outcomes. Paediatr Perinat Epidemiol. 35:726– 735.
Doetsch JN, Dias V, Indredavik MS, et al. (2021). Record linkage of population-based cohort data from minors with national register data: a scoping review and comparative legal analysis of four European countries [version 2; peer review: 3 approved]. Open Research Europe 2021, 1:58. DOI: 10.12688/openreseurope.13689.2.
Doetsch JN, Almendra R, Carrapatoso M, Teixeira C, Barros H (2021). Equitable migrant-friendly perinatal healthcare access and quality in public maternity units in Portugal, European Journal of Public Health, 2021;, ckab125.
Doetsch JN, Marques SCS, Krafft T, et al. (2021). Impact of macro-socioeconomic determinants on sustainable perinatal health care in Portugal: a qualitative study on the opinion of healthcare professionals and experts. BMC Public Health 21, 210. DOI: 10.1186/s12889-021-10194-0.
El Rafei R, Jarreau P, Norman M – EPICE Research Group et al. (2021). Variation in very preterm extrauterine growth in a European multicountry cohort. Archives of Disease in Childhood – Fetal and Neonatal Edition, 106:316-323.
Eves R, Mendonça M, Baumann N, et al. (2021). Association of Very Preterm Birth or Very Low Birth Weight With Intelligence in Adulthood. JAMA Pediatr. 175(8):e211058.
Kajantie E, Johnson S, Heinonen K, et al. – APIC Adults Born Preterm International Collaboration. (2021). Common Core Assessments in follow-up studies of adults born preterm-Recommendation of the Adults Born Preterm International Collaboration. Paediatr Perinat Epidemiol. 35(3):371-387.
Kennedy E, O’Nions E, Wolke D, Johnson S. (2021). Editorial: Is Preterm Birth Overlooked in Child and Adolescent Psychiatry? J Am Acad Child Adolesc Psychiatry. 60(9):1066-1068.
Liu Y, Heron J, Hickman M, Zammit S, Wolke D. (2021). Prenatal stress and offspring depression in adulthood: The mediating role of childhood trauma. J Affect Disord. Epub 2021 Oct 17.
Marques SCS, Doetsch J, Abate G, Brødsgaard A, Colombo G, Cuttini M, Pedersen P, Barros H – on behalf of RECAP Preterm-WP6 QS Work Group (2021). Understanding participation in European cohort studies of preterm children: the views of parents, healthcare professionals and researchers. BMC Med Res Methodol 21, 19. DOI: 10.1186/s12874-020-01206-5.
Morgan AS, Zeitlin J, Källén K, et al. (2021). Birth outcomes between 22 and 26 weeks’ gestation in national population-based cohorts from Sweden, England and France. Acta Paediatr. Epub ahead of print.
Ni Y, Mendonça M, Baumann N, et al. (2021). Social Functioning in Adults Born Very Preterm: Individual Participant Meta-analysis. Pediatrics. 148(5):e2021051986.
Piedvache A, van Buuren S, Barros H, et al. – EPICE Research group. (2021). Strategies for assessing the impact of loss to follow-up on estimates of neurodevelopmental impairment in a very preterm cohort at 2 years of age. BMC Med Res Methodol. 21(1):118.
Risnes K, Bilsteen JF, Brown P, et al. (2021). Mortality Among Young Adults Born Preterm and Early Term in 4 Nordic Nations. JAMA Netw Open. 4(1):e2032779. Erratum in: JAMA Netw Open. 4(2):e210068.
Sentenac M, Benhammou V, Aden U, et al. (2021). Maternal education and cognitive development in 15 European very-preterm birth cohorts from the RECAP Preterm platform. Int J Epidemiol. Epub ahead of print.

2020

Meregaglia M, Croci I, Brusco C et al. (2020). Low socio‐economic conditions and prematurity‐related morbidities explain healthcare use and costs for 2‐year‐old very preterm children. Acta Paediatrica, 109 (9): p. 1791-1800.
Costa R, Johnson S, Cuttini M, et al. (2020). The impact of choice of norms on classification of motor impairment for children born very preterm. Early Hum Dev. 146:105056.
Loureiro D, Jorge AM. (2020). MedLinker: Medical Entity Linking with Neural Representations and Dictionary Matching. In: Jose J. et al. (eds) Advances in Information Retrieval. ECIR 2020. Lecture Notes in Computer Science, Vol 12036. Springer, Cham.
van der Pal SM, van der Meulen SA, Welters SM, Bakker LA, de Groot CJM, van Kaam AH, Verrips E (2020). Reproductive risks in 35-year-old adults born very preterm and/or with very low birth weight: an observational study Eur J Pediatr. DOI: 10.1007/s00431-020-03864-5
Persson M, Opdahl S, Risnes K, Gross R, Kajantie E, Reichenberg A, Gissler M, Sandin S (2020). Gestational age and the risk of autism spectrum disorder in Sweden, Finland, and Norway: A cohort study. PLoSMed. 17(9):e1003207. DOI: 10.1371/journal.pmed.1003207.
Marques SCS, Doetsch J, Brødsgaard A, Cuttini M, Draper ES, Kajantie E, Lebeer J, van der Pal S, Pedersen P, RECAP – WP6 QS Work Group, Barros H (2020). Improving Understanding of Participation and Attrition Phenomena in European Cohort Studies: Protocol for a Multi-Situated Qualitative Study. JMIR Res Protoc 2020;9(7):e14997. DOI: 10.2196/14997.
Suikkanen J, Miettola S, Heinonen K, Vääräsmäki M, Tikanmäki M, Sipola M, Matinolli HM, Järvelin MR, Räikkönen K, Hovi P, Kajantie E (2020). Reaction times, learning, and executive functioning in adults born preterm. Pediatr Res. DOI: 10.1038/s41390-020-0851-4.
Robinson R, Lahti-Pulkkinen M, Schnitzlein D, Voit F, Girchenko P, Wolke D, Lemola S, Kajantie E, Heinonen K, Räikkönen K (2020). Mental health outcomes of adults born very preterm or with very low birth weight: A systematic review. Semin Fetal Neonatal Med. 2020 Apr 28:101113. DOI: 10.1016/j.siny.2020.101113.
Björkqvist J, Kuula J, Kuula L, Nurhonen M, Hovi P, Räikkönen K, Pesonen A, Kajantie E (2020). Chronotype in very low birth weight adults – a sibling study. Chronobiol Int. 2020 Apr 30:1-11. DOI: 10.1080/07420528.2020.1754847.
Evensen KAI, Ustad T, Tikanmäki M, Haaramo P, Kajantie E (2020). Long-term motor outcomes of very preterm and/or very low birth weight individuals without cerebral palsy: A review of the current evidence. Seminars in Fetal and Neonatal Medicine. 2020 May 20:101116. DOI: 0.1016/j.siny.2020.101116.
Eves R., Mendonça M., Bartmann P., Wolke D. (2020). Small for Gestational Age‐Cognitive Performance from Infancy to Adulthood: An Observational Study. BJOG: An International Journal of Obstetrics & Gynaecology. DOI: 10.1111/1471-0528.16341
Eves R., von Mühlenen A., Mendonça M., Johnson S., OʼReilly H., Bartmann P., … & Wolke D. (2020). The Role of Executive and General Cognitive Functioning in the Attention Problems of Very and Extremely Preterm Adults. Journal of Developmental & Behavioral Pediatrics. DOI: 10.1097/DBP.0000000000000806
Lorthe E., Moreira C., Weber T., et al. (2020). Unit policies regarding tocolysis after preterm premature rupture of membranes: association with latency, neonatal and 2-year outcomes (EPICE cohort). Sci Rep. 10(1):9535. DOI: 10.1038/s41598-020-65201-y. PMID: 32533019 .
Evensen K.A.I., Ustad T., Tikanmäki M., et al. (2020). Long-term motor outcomes of very preterm and/or very low birth weight individuals without cerebral palsy: A review of the current evidence. [article in press]. Seminars in Fetal and Neonatal Medicine. DOI:10.1016/j.siny.2020.101116.
Sentenac M., Boutron I., Draper E.S., et al. (2020). Defining Very Preterm Populations for Systematic Reviews With Meta-analyses. [published online ahead of print, 2020 Jun 15]. JAMA Pediatr, e200956. DOI:10.1001/jamapediatrics.2020.095
Zeitlin J., Sentenac M., Morgan A.S., et al. (2020). Priorities for collaborative research using very preterm birth cohorts. [published online ahead of print, 2020 Feb 6]. Arch Dis Child Fetal Neonatal Ed, fetalneonatal-2019-317991. DOI:10.1136/archdischild-2019-317991.
Sentenac M., Johnson S., Charkaluk M.L., et al. (2020). Maternal education and language development at 2 years corrected age in children born very preterm: results from a European population-based cohort study. J Epidemiol Community Health, 74(4):346-353. DOI:10.1136/jech-2019-213564.
Torchin H., Morgan A.S., Ancel P.-Y. (2020). International comparisons of neurodevelopmental outcomes in infants born very preterm. Fetal Neonatal Meds, in press. DOI:10.1016/j.siny.2020.101109.
Robinson, R., Lahti-Pulkkinen, M., Schnitzlein, D., Voit, F., Girchenko, P., Wolke, D., Räikkönen, K. (2020). Mental Health Outcomes of Adults Born Very Preterm or with Very Low Birth Weight: A systematic review. Seminars in Fetal & Neonatal Medicine. DOI: 10.1016/j.siny.2020.101113.
van der Pal SM, Steinhof M, Grevinga M, Wolke D, Verrips E (2020). Quality of life of adults born very preterm or very low birth weight: A systematic review. Acta Paediatrica, DOI: 10.1111/apa.15249.
Alenius S, Kajantie E, Sund R, Nurhonen M, Näsänen-Gilmore P, Vääräsmäki M, Gissler M, Hovi P (2020). Out-of-home care placements of children and adolescents born preterm: A register-based cohort study. Paediatr Perinat Epidemiol, 34(1):38-47.

2019

Jaekel J, Sorg C, Baeuml J, Bartmann P, Wolke D. (2019). Head Growth and Intelligence from Birth to Adulthood in Very Preterm and Term Born Individuals. J Int Neuropsychol Soc. 25(1):48-56.
Petrou S, Krabuanrat N, Khan KA (2019). Systematic review and meta-analysis of preference-based health-related quality of life outcomes associated with preterm birth. PharmacoEconomics, in press. DOI: 10.1007/s40273-019-00865-7.
van der Pal SM, Steinhof M, Grevinga M, Wolke D, Verrips E (2019). Issues in quality of life of adults born very preterm or very low birth weight compared to adults born full-term: A systematic review. Abstract. 3^rd Congress of Joint European Neonatal Societies (jENS 2019). Pediatric Research, 86: 1–64.
van der Pal SM, Maurice-Stam H, Grootenhuis MA, van Wassenaer-Leemhuis AG, Verrips GHW (2019). Psychosocial developmental trajectory of a cohort of young adults born very preterm and/or with a very low birth weight in the Netherlands. J Patient Rep Outcomes, 7;3(1):17.
Evensen KAI, Tikanmäki M, Heinonen K, Matinolli HM, Sipola-Leppänen M, Lano A, Wolke D, Vääräsmäki M, Eriksson JG, Andersson S, Järvelin MR, Hovi P, Räikkönen K, Kajantie E (2019). Musculoskeletal pain in adults born preterm: Evidence from two birth cohort studies. Eur J Pain, 23(3):461-471.
Toffol E, Rantalainen V, Lahti-Pulkkinen M, Girchenko P, Lahti J, Tuovinen S, Lipsanen J, Villa PM, Laivuori H, Hämäläinen E, Kajantie E, Pesonen AK, Räikkönen K (2019). Infant regulatory behavior problems during first month of life and neurobehavioral outcomes in early childhood. Eur Child Adolesc Psychiatry, 28(6):847-859.
Karvonen R, Sipola M, Kiviniemi A, Tikanmäki M, Järvelin MR, Eriksson JG, Tulppo M, Vääräsmäki M, Kajantie E (2019). Cardiac Autonomic Function in Adults Born Preterm. J Pediatr, 208:96-103.
Kaseva N, Vääräsmäki M, Sundvall J, Matinolli HM, Sipola M, Tikanmäki M, Heinonen K, Lano A, Wehkalampi K, Wolke D, Ruokonen A, Andersson S, Järvelin MR, Räikkönen K, Eriksson JG, Kajantie E (2019). Gestational Diabetes But Not Prepregnancy Overweight Predicts for Cardiometabolic Markers in Offspring Twenty Years Later. J Clin Endocrinol Metab, 104(7):2785-2795.
Karvonen R, Sipola M, Kiviniemi AM, Tikanmäki M, Järvelin MR, Eriksson JG, Tulppo MP, Vääräsmäki M, Kajantie E (2019). Postexercise Heart Rate Recovery in Adults Born Preterm. J Pediatr, 214:89-95.
Ijäs H, Koivunen S, Raudaskoski T, Kajantie E Gissler M, Vääräsmäki M (2019). Independent and concomitant associations of gestational diabetes and maternal obesity to perinatal outcome: A register-based study. PLoS One, 29;14(8):e0221549.
Robinson R, Lahti-Pulkkinen M, Heinonen K, Reynolds RM, Räikkönen K (2019). Fetal programming of neuropsychiatric disorders by maternal pregnancy depression: a systematic mini review. Pediatr Res, 85(2):134-145.
Lopes I., Doetsch J., Redinha M., Barros H. (2019). Data protection and the processing of personal data of very preterm (VPT) and very low birth weight (VLBW) children for scientific health research. Revista Electrónica de Direito. VOL. 20. 10.24840/2182-9845_2019-0003_0005.
Liu Y, Mendonça M, Johnson S, O’Reilly H, Bartmann P, Marlow N, Wolke D (2019). Testing the neurodevelopmental, trauma and developmental risk factor models of psychosis using a naturalistic experiment. Psychol Med, 9:1-10.
Wolke D, Johnson S, Mendonça M (2019). The Life Course Consequences of Very Preterm Birth. Annu Rev Dev Psychol, 1:69–92.
Mendonça M, Bilgin A, Wolke D (2019). Association of Preterm Birth and Low Birth Weight With Romantic Partnership, Sexual Intercourse, and Parenthood in Adulthood – A Systematic Review and Meta-analysis. JAMA Netw Open, 2 (7): e196961.
Petrou S (2019). Health economic aspects of late preterm and early term birth. Semin Fetal Neonatal Med, 24 (1): 18-26.
Petrou S, Yiu HH, Kwon J (2019). Economic consequences of preterm birth: a systematic review of the recent literature (2009-2017). Arch Dis Child, 104(5): 456-465.
van der Pal SM, Maurice-Stam H, Grootenhuis MA, van Wassenaer-Leemhuis AG, Verrips GHW (2019). Psychosocial developmental trajectory of a cohort of young adults born very preterm and/or with a very low birth weight in the Netherlands. J Patient Rep Outcomes. 3: 17.

2018

Tuovinen S, Lahti-Pulkkinen M, Girchenko P, Lipsanen J, Lahti J, Heinonen K, Reynolds RM, Hämäläinen E, Kajantie E, Laivuori H, Pesonen AK, Villa PM, Räikkönen K (2018). Maternal depressive symptoms during and after pregnancy and child developmental milestones. Depress Anxiety, 35(8):732-741.
Suarez A, Lahti J, Czamara D, et al. (2018). The epigenetic clock and pubertal, neuroendocrine, psychiatric, and cognitive outcomes in adolescents. Clin Epigenetics. 10(1):96.
Näsänen-Gilmore P, Sipola-Leppänen M, Tikanmäki M, Matinolli HM, Eriksson JG, Järvelin MR, Vääräsmäki M, Hovi P, Kajantie E (2018). Lung function in adults born preterm. PLoS One, 19;13(10):e0205979.
Girchenko P, Tuovinen S, Lahti-Pulkkinen M et al. (2018). Maternal early pregnancy obesity and related pregnancy and pre-pregnancy disorders: associations with child developmental milestones in the prospective PREDO Study. Int J Obes, 42 (5): 995–1007.
Bilgin A, Mendonca M, Wolke D (2018). Preterm Birth/Low Birth Weight and Markers Reflective of Wealth in Adulthood: A Meta-analysis. Pediatrics, 142 (1). pii: e20173625.