Module 04

Managing preterm cohort data using the platform: functionality overview

Please contact the presenter for a permission to use the content from the E-Learning modules. Thank you for your understanding.

 

YouTube video

Interview with Artur Rocha, Prof., INESC TEC, Project Staff

Duration: 10min

1. Overview of the RECAP Preterm Data Platform

 
YouTube video

 

 

Gonçalo Gonçalves

Duration: 20min

Summary

A brief overview of the RECAP Preterm Data Platform, including a basic demonstration of the central portal, a description of the nodes that comprise the platform, their inner structure and how they communicate with the central node.

Learning goals

  • 00:00 Introduction
  • 00:38 What is the RECAP Preterm Data Platform?
  • 02:30 Architecture of the RECAP Preterm Data Platform
  • 07:08 Components of a RECAP Node
  • 17:05 What’s Next?

 

2. Setting Up Data in the Data Repository

YouTube video

 

 

Gonçalo Gonçalves

Duration: 30min

Summary

A demonstration of the RECAP Preterm Data Platform: the main functionalities of the Data Repository, such as creating projects or importing and managing data on a node.

Learning goals

  • 00:00 Introduction
  • 01:17 Creating a Project
  • 07:04 Importing Data Using a CSV Data File and a Dictionary
  • 23:48 Importing Data Using a STATA, SAS or SPSS Data File

 

3. Adding Metadata in the Study Manager

YouTube video

 

 

Gonçalo Gonçalves

Duration: 35min

Summary

A demonstration of the RECAP Preterm Data Platform: the main functionalities of the Study Manager, such as describing a study, its population and data collection events, and subsequent publication on a node’s catalogue. RECAP Preterm Data Platform Wiki:
https://gitlab.inesctec.pt/wp4-recap/recap-preterm-wiki/-/wikis

Learning goals

  • 00:00 Introduction
  • 00:38 Creating and Describing a Study
  • 11:14 Describing Study Populations and Data Collection Events
  • 17:44 Linking a Study to Data in a Data Repository
  • 22:46 Publishing a Study
  • 34:07 Closing Remarks

 

4. Harmonising Data Across Multiple Studies

YouTube video

 

 

Gonçalo Gonçalves

Duration: 1h 2min

Summary

A demonstration of the RECAP Preterm Data Platform: how to harmonise data across multiple studies. RECAP Preterm Data Platform Wiki:
https://gitlab.inesctec.pt/wp4-recap/recap-preterm-wiki/-/wikis

Learning goals

  • 00:00 Introduction
  • 00:58 Using Views in the Data Repository
  • 07:12 A Real Example of Harmonisation on the Platform
  • 13:52 Uploading the Harmonisation Dictionary
  • 20:18 Creating a View over the Original Table
  • 23:18 Harmonising to a Categorical Variable
  • 36:25 Harmonising to a Continuous Variable
  • 51:40 Harmonising a Continuous Variable to a Categorical Variable
  • 54:27 Publishing a Harmonisation Study
  • 1:01:15 Closing Remarks

 

5. Managing Users and Permissions

YouTube video

 

 

Gonçalo Gonçalves

Duration: 21min

Summary

A demonstration of the RECAP Preterm Data Platform: how to manage user accounts on a node and how to grant different levels of access to specific data. RECAP Preterm Data Platform Wiki:
https://gitlab.inesctec.pt/wp4-recap/recap-preterm-wiki/-/wikis

Learning goals

  • 00:00 Introduction
  • 00:26 Creating Users and Groups
  • 07:20 Granting Access to Data in the Data Repository
  • 17:47 Setting Up Permissions for Data Analysis

 

6. Performing Analysis

YouTube video

 

 

Gonçalo Gonçalves

Duration: 37min

Summary

A demonstration of the RECAP Preterm Data Platform: how to perform analysis on IPD or aggregated data using R or DataSHIELD, respectively. RECAP Preterm Data Platform Wiki:
https://gitlab.inesctec.pt/wp4-recap/recap-preterm-wiki/-/wikis

Learning goals

  • 00:00 Introduction
  • 00:23 Analysis Using Individual Patient Data (IPD)
  • 04:01 Analysis Using Non-disclosive, Aggregated Data (with DataSHIELD)
  • 35:30 Closing Remarks