Whole countries as cohorts – Nordic registers as tools to assess long-term outcomes of preterm birth
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1. Introduction to the course, learning goals
This course consists of ppt-presentations and videoclips. To complete the course, attend the general exam of the online Summer School
- To know what the course consists of
- To know from what angle is presenter will enter the scene
- To have an overview on learning goals in each presentation
Interview with Eero Kajantie, Prof., National Institute for Health and Welfare THL, Project Leader
2. Registry-based research in the Nordic countries
Eero Kajantie, Prof.
Signe Opdahl, Assoc. Professor
Overview of what characterizes health registries in the Nordic countries and how data from registries can be used in health research, including some advantages and limitations.
- Learn why this is important
- Time needed to prepare – Challenges
- Time needed to perform – Success stories
- Details presented in other videos
- Be able to describe what a health registry is and give some examples
- Describe major strengths and limitations of registry data in health research
3.Register data in the Nordic RECAP partners
Johanna Metsälä, PhD, Anna Pulakka, PhD, others
We will briefly present the register data available in the RECAP project in the four Nordic countries. Some special characteristics of the data available in each country are also presented along with sources for further information.
- To be aware of the differences in the register data in different countries
- To know sources for further information of the special features of the register data in different countries
4. Performing a research project, from scratch to publication
Josephine Funck Bilsteen, Phd student
5. Case study: adding register data to a cohort study
Anna Pulakka, PhD,
A practical overview of adding register data to a cohort study using the ADHD study as an example.
- To identify register data as a possibility for expanding analyses in certain study questions.
- To understand what needs to be taken into consideration when adding register data to a cohort study.
6. Register-based studies on Premature Children
History and usefulness of registers on the newborn in the Nordic countries.
- To get information on the registration of newborns, including data collection on congenital anomalies
- To familiarise on the content of perinatal databases
- To understand the usefulness and prerequisites for their use in research on preterm children